Actual concordance between Veterans’ with Gulf War illness and their providers’ illness perceptions is not related to patient satisfaction nor treatment adherence

Abstract: Objective: Patients with persistent physical symptom (PPS) conditions, such as Gulf War Illness (GWI), report disagreement or “non-concordance” with their providers about PPS conditions and dissatisfaction with healthcare. When patients perceive concordance with their providers about their PPS condition, they have increased satisfaction and adherence. While literature supports perceived concordance, there is a lack of research on actual concordance (i.e., the congruence of patients’ and providers’ perceptions of the patients’ illness). Methods: Among dyads of Veterans with GWI and their provider, we tested the hypotheses that greater actual concordance would be associated with greater Veterans’ satisfaction and adherence. We also explored the relationship of actual concordance with Veterans’ and providers’ perceived concordance. Results: Correlations suggest there is little agreement between Veterans and providers regarding GWI illness perceptions or perceptions of concordance. Polynomial regression analyses showed that actual concordance was not significantly related to Veterans’ satisfaction, adherence, or perceptions of concordance, nor to providers’ perceptions of concordance. Conclusion: Although literature finds Veterans’ perceived concordance with their provider about PPS influences patients’ experiences of care, our results suggest that actual concordance may have limited influence on experiences of care and either Veterans’ or providers’ perceived concordance. That is, the results suggest there does not need to be objective agreement between patients and providers about PPS, rather patients’ perception of agreement influences their satisfaction and adherence. Practice Implications: Our results suggest that patients with PPS and their providers may have difficulties in estimating if there is shared agreement in the relationship and demonstrate the importance of explicitly assessing patients’ perceptions of concordance.

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